{"id":21181,"date":"2024-04-23T11:51:04","date_gmt":"2024-04-23T11:51:04","guid":{"rendered":"https:\/\/newlifecharity.co.uk\/?p=21181"},"modified":"2024-04-23T11:51:04","modified_gmt":"2024-04-23T11:51:04","slug":"newlife-calls-on-the-government-to-fight-for-our-future","status":"publish","type":"post","link":"https:\/\/newlifecharity.co.uk\/newlife-calls-on-the-government-to-fight-for-our-future\/","title":{"rendered":"Newlife calls on the Government to Fight For Our Future"},"content":{"rendered":"<p>We at Newlife are incredibly proud to launch our new campaign, <strong>Fight For Our Future<\/strong>, alongside Royal College of Occupational Therapists, Disabled Children\u2019s Partnership,<!--more--> Caudwell Children, Whizz-Kidz, British Healthcare Trades Association and Family Fund. Here, Newlife&#8217;s <strong>Campaign Manager Matthew Jackson<\/strong> explains how you can join the fight:<\/p>\n<p>At a time when the number of disabled children has nearly doubled in the last decade, we wanted to understand how local services are responding to this increasing demand.<\/p>\n<p>To do this, we engaged with hundreds of families and professionals on the front line, conducted research of local services across the country, and collaborated with a number of charities and organisations in this sector.<\/p>\n<p>One conclusion became painfully clear &#8211; <strong>it has never been more difficult for disabled children and their families to access the support they need, particularly for specialist equipment<\/strong>.<\/p>\n<p>Disabled children and their families are being continually let down, caught in the middle of a dysfunctional system which is devoid of leadership, chronically short on professionals and suffering from insufficient equipment budgets. <strong>Children pay the price through devastating wait times for assessment, which in some areas exceeds three years<\/strong>.<\/p>\n<p>Our findings reveal the stark numbers beneath this story. Despite record demand, 60% of local services saw assessment waits grow, and nearly half spent less on specialist equipment than the year before. <strong>Consequently,<\/strong> <strong>only 2 in 5 families feel their child has all the equipment they need<\/strong>.<\/p>\n<p>This is leaving growing numbers of disabled children falling through the cracks left by a system which is not fit for purpose.<\/p>\n<p>We heard from a young man called Rhys who has cerebral palsy and requires a hoist in order to access everyday family life. Two years after first asking, local services provided a hoist they knew to be unsuitable, just to tick a box. Thankfully, Newlife stepped in and provided the right equipment. However Mum was left asking <strong>what if Newlife had not been there?<\/strong><\/p>\n<div id=\"attachment_20645\" style=\"width: 310px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-20645\" class=\"wp-image-20645 size-medium\" src=\"https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/02\/Rhys-and-Kelly-1-300x200.png\" alt=\"A boy in a wheelchair being strapped into a hoist by his mum.\" width=\"300\" height=\"200\" \/><p id=\"caption-attachment-20645\" class=\"wp-caption-text\">Rhys and his mum Kelly turned to Newlife for help after a two-year wait for statutory provision.<\/p><\/div>\n<p>Disabled children deserve local services which are proactive and responsive to their needs, to ensure they are able to live a life free from pain and with the opportunities to achieve their full potential. We call on the Government to recognise this and make disabled children a priority at the highest level.<\/p>\n<p>This can be achieved through establishing a dedicated Minister for Disabled Children at the heart of decision-making, shaping policies across a range of departments including health, transport, and education. This role should #<strong>ACTNow<\/strong> to <strong>accelerate<\/strong> equipment provision, <strong>cut<\/strong> assessment wait times and <strong>tackle<\/strong> staff shortages.<\/p>\n<p>We ask that you sign our petition today at <a href=\"https:\/\/newlifecharity.co.uk\/fight-for-our-future\/\">newlifecharity.co.uk\/fight-for-our-future\/<\/a> to tell party leaders that your vote will go to the party who will make disabled children a priority at the next election.<\/p>\n<p><strong>It\u2019s time to prioritise the well-being and potential of disabled children and ensure they receive the care, leadership, and attention they deserve. It\u2019s time to end the fight for their futures. <\/strong><\/p>\n<p><strong>#FightForOurFuture #TeamNewlife<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>We at Newlife are incredibly proud to launch our new campaign, Fight For Our Future, alongside Royal College of Occupational Therapists, Disabled Children\u2019s Partnership,<\/p>\n","protected":false},"author":17,"featured_media":21182,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_lmt_disableupdate":"","_lmt_disable":"","footnotes":""},"categories":[1,19],"tags":[68,69,70,71],"class_list":["post-21181","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-london","tag-fight-for-our-future","tag-campaign","tag-team-newlife","tag-act-now"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - 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