{"id":20639,"date":"2024-02-09T12:06:28","date_gmt":"2024-02-09T12:06:28","guid":{"rendered":"https:\/\/newlifecharity.co.uk\/?page_id=20639"},"modified":"2025-07-24T10:41:24","modified_gmt":"2025-07-24T10:41:24","slug":"fight-for-our-future","status":"publish","type":"page","link":"https:\/\/newlifecharity.co.uk\/fight-for-our-future\/","title":{"rendered":"Fight For Our Future"},"content":{"rendered":"

[et_pb_section fb_built=”1″ admin_label=”Section” module_class=”bg-opactiy01″ _builder_version=”4.24.3″ background_image=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/04\/Campaign-header.png” min_height=”545.8px” custom_margin=”30px||4px||false|false” custom_padding=”183px||183px||true|false” background_last_edited=”on|desktop” background_image_tablet=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/02\/Rhys-and-Kelly-1.png” background_image_phone=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/02\/Rhys-and-Kelly-1.png” background_enable_image_tablet=”on” background_enable_image_phone=”on” da_disable_devices=”off|off|off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”Fight For Our Future” _builder_version=”4.24.3″ _module_preset=”default” title_text_align=”center” title_text_color=”#FFFFFF” custom_css_free_form=”\/* Hide h1 on 768px higher screen *\/||@media screen and (min-width:768px) {||h1 {|| display: none;||}||}||” global_colors_info=”{}”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Section” _builder_version=”4.17.4″ _module_preset=”default” min_height=”370.9px” custom_margin=”3px|||||” custom_padding=”66px||60px||false|false” da_disable_devices=”off|off|off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row use_custom_gutter=”on” make_equal=”on” _builder_version=”4.16″ _module_preset=”default” width=”83%” module_alignment=”center” custom_margin=”-16px|auto||auto||” custom_padding=”8px||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”default” text_font=”Roboto||||||||” text_text_color=”rgba(10,0,0,0.8)” text_font_size=”16px” header_font=”Roboto||||||||” header_text_color=”#df1996″ header_2_font=”Roboto|700|||||||” header_2_text_color=”#df1996″ header_2_font_size=”32px” header_3_font=”Roboto||||||||” header_3_text_color=”#e22f87″ header_3_font_size=”29px” header_4_text_color=”#008dd0″ custom_margin=”|||1px||” global_colors_info=”{}”]<\/p>\n

Give disabled children the future they deserve<\/h2>\n

 <\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row use_custom_gutter=”on” make_equal=”on” _builder_version=”4.16″ _module_preset=”default” width=”83%” module_alignment=”center” custom_margin=”-16px|auto||auto||” custom_padding=”8px||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.3″ _module_preset=”default” text_font=”Roboto||||||||” text_text_color=”rgba(10,0,0,0.8)” text_font_size=”16px” header_font=”Roboto||||||||” header_text_color=”#df1996″ header_2_font=”Roboto|700|||||||” header_2_text_color=”#df1996″ header_2_font_size=”45px” header_3_font=”Roboto||||||||” header_3_text_color=”#e22f87″ header_3_font_size=”29px” header_4_text_color=”#008dd0″ custom_margin=”-23px||-9px|2px||” custom_padding=”26px||16px|0px||” global_colors_info=”{}”]<\/p>\n

All children deserve the right to live a life free from pain and to fulfil their full potential. Yet, too many of the 1.6 million disabled children in the UK are being routinely let down as they lack access to crucial support and specialist equipment such as wheelchairs, buggies and beds.<\/p>\n

These children are left to suffer in pain, with their safety compromised and isolated from the world. For many, they are denied the opportunities we all take for granted, including the chance to go to school, develop skills and independence for the future or to even leave the house safely.<\/p>\n

We are calling on the next government to implement a series of cost-effective reforms which will win the fight for disabled children’s futures.<\/p>\n

 <\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/newlifecharity.co.uk\/fight-for-our-future\/#help-newlife” button_text=”Take Action Now” _builder_version=”4.17.4″ _module_preset=”default” custom_button=”on” button_text_color=”#FFFFFF” button_bg_color=”#df1996″ button_border_radius=”5px” custom_padding=”3px|||||” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.17.4″ _module_preset=”default” background_color=”#f8f8f8″ custom_padding=”||32px|||” da_disable_devices=”off|off|off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px||9px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”default” text_font=”Roboto||||||||” header_3_font=”Roboto||||||||” header_3_text_color=”#df1996″ header_3_font_size=”29px” custom_margin=”0px||||false|false” custom_padding=”|||1px||” global_colors_info=”{}”]<\/p>\n

Fighting for those just like Rhys<\/h3>\n

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Rhys Porter from Uxbridge, London, needed a suitable hoist to move around his house safely and to support him post-surgery. However, Rhys and his family were let down by the system leaving 15-year-old Rhys, who has cerebral palsy which affects both his arms and legs, to cope for two years without a hoist. Newlife stepped in to provide one.<\/p>\n

[\/et_pb_text][et_pb_testimonial author=”Kelly, Rhys’ Mum” portrait_url=”data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iNTAwIiBoZWlnaHQ9IjUwMCIgdmlld0JveD0iMCAwIDUwMCA1MDAiIHhtbG5zPSJodHRwOi8vd3d3LnczLm9yZy8yMDAwL3N2ZyI+CiAgICA8ZyBmaWxsPSJub25lIiBmaWxsLXJ1bGU9ImV2ZW5vZGQiPgogICAgICAgIDxwYXRoIGZpbGw9IiNFQkVCRUIiIGQ9Ik0wIDBoNTAwdjUwMEgweiIvPgogICAgICAgIDxyZWN0IGZpbGwtb3BhY2l0eT0iLjEiIGZpbGw9IiMwMDAiIHg9IjY4IiB5PSIzMDUiIHdpZHRoPSIzNjQiIGhlaWdodD0iNTY4IiByeD0iMTgyIi8+CiAgICAgICAgPGNpcmNsZSBmaWxsLW9wYWNpdHk9Ii4xIiBmaWxsPSIjMDAwIiBjeD0iMjQ5IiBjeT0iMTcyIiByPSIxMDAiLz4KICAgIDwvZz4KPC9zdmc+Cg==” portrait_width=”1px” portrait_height=”1px” _builder_version=”4.17.4″ _module_preset=”default” body_text_color=”#FFFFFF” author_text_color=”#FFFFFF” background_color=”#0082ba” width=”100%” custom_margin=”28px|-15px||||” custom_padding=”|25px|18px|8px||” global_colors_info=”{}”]<\/p>\n

\u201cI was left feeling exhausted. We do all the right things but feel constantly failed. Everything is a massive battle. No one should have to fight just for their basic human rights.\u201d<\/strong><\/span><\/p>\n

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What we’ve found…<\/h3>\n

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Only 2 in 5<\/strong>\u00a0families feel their disabled child has all the specialist equipment they need.<\/p>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_cta url_new_window=”on” _builder_version=”4.17.4″ _module_preset=”default” background_color=”#0082ba” custom_button=”on” button_border_radius=”6px” custom_padding=”||20px|||” link_option_url_new_window=”on” border_radii=”on|6px|6px|6px|6px” border_color_all=”#df1996″ global_colors_info=”{}”]<\/p>\n

Waiting lists for assessments have grown over<\/span>\u00a060%<\/span><\/strong> in the last year, as seen by local authorities.<\/span><\/p>\n

<\/span><\/p>\n

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Nearly half<\/strong> of local services cut their equipment spend in the last year.<\/span><\/p>\n

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In the past year, we have worked closely with hundreds of families and professionals to understand their experiences with local services, particularly regarding specialist equipment. This was complemented by extensive Freedom of Information research of local services across the UK to discover how waiting times and equipment spend are responding to the increasing demands.<\/p>\n

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Clemency’s Story<\/h3>\n

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Clemency Hibell is a children\u2019s Occupational Therapist who has worked in the NHS, social care, private special schools, and now runs her own private practice across the UK. In an interview with Newlife The Charity for Disabled Children, she voiced her concerns about the challenges facing disabled children in need for specialist equipment.<\/p>\n

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\u201cThe pressures are immense<\/strong>. The criteria of what you can assess for is so small, and because of service restrictions you can\u2019t always meet those needs. In some departments, you can\u2019t even order new equipment.<\/p>\n

\u201cI\u2019ve spoken to therapists who know they are not giving the child the right piece of equipment, but it\u2019s that or nothing.<\/strong> This is extremely demoralising for professionals. Many are leaving the profession because they don\u2019t want this on their conscience.<\/strong>\u201d<\/p>\n

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We call on the government to ACT now for disabled children:<\/h3>\n

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A<\/strong>ccelerate equipment provision.<\/p>\n

C<\/strong>ut assessment wait times.<\/p>\n

T<\/strong>ackle staff shortages.<\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/newlifecharity.co.uk\/fight-for-our-future\/#help-newlife” button_text=”Take Action Now” _builder_version=”4.17.4″ _module_preset=”default” custom_button=”on” button_text_color=”#FFFFFF” button_bg_color=”#df1996″ button_border_radius=”5px” custom_padding=”3px|||||” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.17.4″ _module_preset=”default” background_color=”#FFFFFF” custom_padding=”||44px|||” da_disable_devices=”off|off|off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px||9px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”default” text_font=”Roboto||||||||” header_3_font=”Roboto||||||||” header_3_text_color=”#df1996″ header_3_font_size=”29px” custom_margin=”0px||||false|false” custom_padding=”|||1px||” global_colors_info=”{}”]<\/p>\n

Roman’s Story…<\/h3>\n

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Roman Pearse, aged two, has Cerebral Palsy affecting all four limbs. He can\u2019t sit up, crawl or roll over unaided, which makes having the right postural support crucial.<\/p>\n

Local services agreed Roman needed a specialist buggy to keep him supported and prevent long-term damage, however they estimated it would be 12 months until this could be provided.<\/p>\n

[\/et_pb_text][et_pb_testimonial author=”Lauren, Roman’s Mum” portrait_url=”data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iNTAwIiBoZWlnaHQ9IjUwMCIgdmlld0JveD0iMCAwIDUwMCA1MDAiIHhtbG5zPSJodHRwOi8vd3d3LnczLm9yZy8yMDAwL3N2ZyI+CiAgICA8ZyBmaWxsPSJub25lIiBmaWxsLXJ1bGU9ImV2ZW5vZGQiPgogICAgICAgIDxwYXRoIGZpbGw9IiNFQkVCRUIiIGQ9Ik0wIDBoNTAwdjUwMEgweiIvPgogICAgICAgIDxyZWN0IGZpbGwtb3BhY2l0eT0iLjEiIGZpbGw9IiMwMDAiIHg9IjY4IiB5PSIzMDUiIHdpZHRoPSIzNjQiIGhlaWdodD0iNTY4IiByeD0iMTgyIi8+CiAgICAgICAgPGNpcmNsZSBmaWxsLW9wYWNpdHk9Ii4xIiBmaWxsPSIjMDAwIiBjeD0iMjQ5IiBjeT0iMTcyIiByPSIxMDAiLz4KICAgIDwvZz4KPC9zdmc+Cg==” portrait_width=”1px” portrait_height=”1px” _builder_version=”4.17.4″ _module_preset=”default” body_text_color=”#FFFFFF” author_text_color=”#FFFFFF” background_color=”#0082ba” width=”100%” custom_margin=”|-15px||||” custom_padding=”|25px|16px|8px||” global_colors_info=”{}”]<\/p>\n

\u201cChildren are suffering. It\u2019s hard for any family to get the equipment they need at the right time. We are seeing children deteriorate and not being able to achieve their full potential due to the lack of equipment and wait times.\u201d<\/strong><\/span><\/p>\n

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What you can do to help:<\/h3>\n

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Don’t forget to share on social using #FightForOurFuture #ACTNow<\/p>\n

Find your local MP here<\/a> to email your letter below.<\/p>\n

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Help us to support more children with disabilities and their families across the UK.<\/p>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_cta title=”Write to your MP” button_url=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/04\/Write-to-MP-letter-2-1.docx” url_new_window=”on” button_text=”Download Letter” _builder_version=”4.24.3″ _module_preset=”default” background_color=”#df1996″ custom_button=”on” button_border_radius=”6px” link_option_url_new_window=”on” border_radii=”on|6px|6px|6px|6px” border_color_all=”#df1996″ global_colors_info=”{}”]<\/p>\n

Tell MPs your vote will be going to the party who make disabled children a priority.<\/p>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_cta title=”Share Your Story” button_url=”https:\/\/newlifecharity.co.uk\/share-your-story\/” url_new_window=”on” button_text=”Find Out More” _builder_version=”4.17.4″ _module_preset=”default” background_color=”#df1996″ custom_button=”on” button_border_radius=”6px” link_option_url_new_window=”on” border_radii=”on|6px|6px|6px|6px” border_color_all=”#df1996″ global_colors_info=”{}”]<\/p>\n

Do you have a story? Whether you’re a medical professional or your family has been affected.<\/p>\n

[\/et_pb_cta][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.24.3″ _module_preset=”default” custom_padding=”||115px|||” da_disable_devices=”off|off|off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row use_custom_gutter=”on” make_equal=”on” module_id=”help-newlife” module_class=”help-newlife” _builder_version=”4.17.4″ _module_preset=”default” width=”83%” module_alignment=”center” custom_margin=”-16px|auto||auto||” custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][et_pb_text module_id=”help-newlife” module_class=”help-newlife” _builder_version=”4.24.3″ _module_preset=”default” text_font=”Roboto||||||||” header_3_font=”Roboto||||||||” header_3_text_color=”#df1996″ header_3_font_size=”29px” custom_margin=”11px||||false|false” custom_padding=”||19px|||” global_colors_info=”{}”]<\/p>\n

In collaboration with…<\/h3>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_5,1_5,1_5,1_5,1_5″ _builder_version=”4.24.3″ _module_preset=”default” custom_padding=”5px|||||” global_colors_info=”{}”][et_pb_column type=”1_5″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/04\/DCP_profile_FB-01-1.png” alt=”DCP logo” title_text=”DCP_profile_FB-01 (1)” _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/04\/FF-logo.png” alt=”Family Fund logo” title_text=”FF logo” _builder_version=”4.24.3″ _module_preset=”default” min_height=”31.7px” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/04\/BHTA-Logo-Colour-transparent-1.jpg” alt=”BHTA logo” title_text=”BHTA-Logo-Colour transparent (1)” _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/04\/cc-logo.png” alt=”Caudwell logo” title_text=”cc logo” _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/newlifecharity.co.uk\/wp-content\/uploads\/2024\/04\/RCOT-logo-1.png” alt=”RCOT logo” title_text=”RCOT-logo (1)” _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Give disabled children the future they deserve  All children deserve the right to live a life free from pain and to fulfil their full potential. Yet, too many of the 1.6 million disabled children in the UK are being routinely let down as they lack access to crucial support and specialist equipment such as wheelchairs, […]<\/p>\n","protected":false},"author":15,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"\r\n

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