{"id":11631,"date":"2022-02-09T09:41:04","date_gmt":"2022-02-09T09:41:04","guid":{"rendered":"https:\/\/newlifecharity.co.uk\/?p=11631"},"modified":"2022-08-17T13:46:28","modified_gmt":"2022-08-17T13:46:28","slug":"disabled-childrens-charity-issues-urgent-appeal-for-south-east","status":"publish","type":"post","link":"https:\/\/newlifecharity.co.uk\/disabled-childrens-charity-issues-urgent-appeal-for-south-east\/","title":{"rendered":"DISABLED CHILDREN\u2019S CHARITY ISSUES URGENT APPEAL FOR SOUTH EAST"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;3.22&#8243; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.14.7&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>A children\u2019s disability charity is urgently appealing for help to fund vital disability equipment for 41 children across the South East on their waiting list for help totalling almost \u00a352,000.<br \/>\nNewlife the Charity for Disabled Children say children are being failed by health and social care services and forced to go without the vital disability equipment they need, leaving families with little choice but to turn to charities for urgent help.<br \/>\nNow Newlife, the largest charity provider of essential disability equipment across the UK, is appealing to communities across the South East to help them fund the equipment that disabled children desperately need for everyday life.<br \/>\nOne of the children on Newlife\u2019s waiting list is five-year-old Ezra Thorman from Ramsgate in Kent, who needs a lightweight wheelchair he can use at school to help him join in, instead of being left on the side-lines to watch.<br \/>\nEzra was diagnosed with Spinal Muscular Atrophy Type 1 at four months old. Until a few years ago he would have likely passed away before the age of two as the muscles needed to swallow and breathe became too weak \u2013 but thanks to new drug Spinraza, the development of his symptoms has slowed significantly.<br \/>\nAlthough Ezra can\u2019t walk or stand unaided, he has limited use of his arms. A wheelchair he can self-propel would not only help develop the strength he needs, it would give him the independence to play with friends and build confidence in his own abilities.<br \/>\nHowever, the family\u2019s local Wheelchair Services could only offer Ezra a standard wheelchair and, on assessment, they didn\u2019t think he was strong enough to use it. Instead, his family received a \u00a3556 voucher towards a lightweight wheelchair, leaving them to raise a further \u00a3835 \u2013 so they turned to Newlife for help.<br \/>\nMum Portia said: \u201cWe know it\u2019s because of Spinraza he is surviving, but we want him to really live \u2013 and to make the most of his life he needs the right equipment.<br \/>\n\u201cEzra is really bright and loves any bit of independence he can get. He\u2019s in reception class in a mainstream school, but only has an adaptive seat on wheels which has to be pushed. Without a lightweight wheelchair he can\u2019t move, do anything by himself, or even join in with friends.\u201d<br \/>\nNewlife can only help Ezra and the 41 other children on the waiting across the South East if it can raise the necessary funds.<br \/>\nNewlife\u2019s founder and CEO Sheila Brown said: \u201cWe often hear of children left without vital equipment, including specialist beds, wheelchairs, seating, and walkers, because of red tape, waiting lists, or lack of the right equipment.<br \/>\n\u201cBeing forced to go without this means disabled children are left at serious risk of injury, trapped in hospital waiting for discharge, unable to fulfil their true potential, or, tragically, unable to find comfort in their last months of life, even having their condition \u2013 and pain \u2013 worsen unnecessarily.<br \/>\n\u201cFor many families contacting Newlife is a last resort and as a charity we are doing everything we can to fund the equipment that is often described as \u2018life changing\u2019. We urgently need help to do this.\u201d<\/p>\n<p><strong>You can help change the life of a disabled child in South East right now by<\/strong> <a href=\"https:\/\/newlife.support\/KidsSouthEast\">clicking here.<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>A children\u2019s disability charity is urgently appealing for help to fund vital disability equipment for 41 children across the South East on their waiting list for help totalling almost \u00a352,000. Newlife the Charity for Disabled Children say children are being failed by health and social care services and forced to go without the vital disability [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":12402,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"A children\u2019s disability charity is urgently appealing for help to fund vital disability equipment for 41 children across the South East on their waiting list for help totalling almost \u00a352,000.\r\nNewlife the Charity for Disabled Children say children are being failed by health and social care services and forced to go without the vital disability equipment they need, leaving families with little choice but to turn to charities for urgent help.\r\nNow Newlife, the largest charity provider of essential disability equipment across the UK, is appealing to communities across the South East to help them fund the equipment that disabled children desperately need for everyday life.\r\nOne of the children on Newlife\u2019s waiting list is five-year-old Ezra Thorman from Ramsgate in Kent, who needs a lightweight wheelchair he can use at school to help him join in, instead of being left on the side-lines to watch.\r\nEzra was diagnosed with Spinal Muscular Atrophy Type 1 at four months old. Until a few years ago he would have likely passed away before the age of two as the muscles needed to swallow and breathe became too weak \u2013 but thanks to new drug Spinraza, the development of his symptoms has slowed significantly.\r\nAlthough Ezra can\u2019t walk or stand unaided, he has limited use of his arms. A wheelchair he can self-propel would not only help develop the strength he needs, it would give him the independence to play with friends and build confidence in his own abilities.\r\nHowever, the family\u2019s local Wheelchair Services could only offer Ezra a standard wheelchair and, on assessment, they didn\u2019t think he was strong enough to use it. Instead, his family received a \u00a3556 voucher towards a lightweight wheelchair, leaving them to raise a further \u00a3835 \u2013 so they turned to Newlife for help.\r\nMum Portia said: \u201cWe know it\u2019s because of Spinraza he is surviving, but we want him to really live \u2013 and to make the most of his life he needs the right equipment.\r\n\u201cEzra is really bright and loves any bit of independence he can get. He\u2019s in reception class in a mainstream school, but only has an adaptive seat on wheels which has to be pushed. Without a lightweight wheelchair he can\u2019t move, do anything by himself, or even join in with friends.\u201d\r\nNewlife can only help Ezra and the 41 other children on the waiting across the South East if it can raise the necessary funds.\r\nNewlife\u2019s founder and CEO Sheila Brown said: \u201cWe often hear of children left without vital equipment, including specialist beds, wheelchairs, seating, and walkers, because of red tape, waiting lists, or lack of the right equipment.\r\n\u201cBeing forced to go without this means disabled children are left at serious risk of injury, trapped in hospital waiting for discharge, unable to fulfil their true potential, or, tragically, unable to find comfort in their last months of life, even having their condition \u2013 and pain \u2013 worsen unnecessarily.\r\n\u201cFor many families contacting Newlife is a last resort and as a charity we are doing everything we can to fund the equipment that is often described as \u2018life changing\u2019. We urgently need help to do this.\u201d\r\nYou can help change the life of a disabled child in South East right now just go to https:\/\/newlife.support\/KidsSouthEast to make a donation.\r\nAny money raised above the total amount needed for Ezra to receive the lightweight wheelchair will be used to help other disabled and terminally ill children in need.","_et_gb_content_width":"","_lmt_disableupdate":"","_lmt_disable":"","footnotes":""},"categories":[1,20],"tags":[],"class_list":["post-11631","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-south-east"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Newlife Charity Is Urgently Appealing For Help - newlifecharity<\/title>\n<meta name=\"description\" content=\"Newlife Charity is urgently appealing for help to fund vital disability equipment for 41 children across the South East on their waiting list.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/newlifecharity.co.uk\/disabled-childrens-charity-issues-urgent-appeal-for-south-east\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Newlife Charity Is Urgently Appealing For Help - 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